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Baby Eli, Born Without A Nose, Tragically Dies At 2

Two years ago, the story of baby Eli captivated the world.  Eli was born with congenital arhinia, an extremely rare condition that left him without a nose.  

Sadly, Eli died on June 3rd.  

In other cases of congenital arhinia, doctors had been able to create a nose, but they had to wait until the child was older.  But Eli had other difficulties.  His soft palate did not develop properly and his brain sat lower in his head.  

He struggled but lived every second of his short life to the fullest.  Eli learned sign language to communicate.

RIP, little one.


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